Extra Mayo: I Just Need to Move

My latest trip to Mayo in Rochester, MN did not go as planned. My original hope was to be there for a week, however my test results dictated an extended stay. It was mentally draining to have tests for almost two weeks and being away from home is never easy.

The good news from this trip was my heart shows no sign of active sarcoidosis, however, now we’re testing other organs that may be impacted. My skin is also angry so we decided to have another biopsy to try and compare them to previous instances of sarcoid on my skin.

Most days, I’m in great deal of pain in all joints as well as widespread inflammation. I’m tired, achey, and have a more difficult time breathing during normal activities. I know the most likely scenario is I’ll need to resume taking immune suppressing drugs. The same type of drugs that could not prevent the removal of my colon last year.

“Just stop running,” was the answer from a doctor when I asked for their suggestion to address fluid in my knees.

Movement is the one effective treatment for my mental and physical health. While I may not be running or mountain biking as fast or as far as I once could, I’m committed to moving my body.

Each doctor I met with had the same general response, “You’re a puzzle that we have yet to solve.”

I just need to move.