Extra Mayo: Undiagnosable

A recent virtual meeting with my Mayo team to review my last batch of tests revealed two things:

I’m still undiagnosable.

I remain optimistic.

My liver, spleen, and lungs all showed questions of some level of sarcoid involvement or inflamation. Unfortunately imaging alone has been inconclusive. Therefore, after deliberating the risks and benefits, my wife and I decided to move forward with a liver biopsy. It’s the best chance we have to see if it’s sarcoid related or some other condition impacting my body. I’m also realistic in knowing the results will most likely be inconclusive.

I’ve been told by many doctors my experience is not text book nor explainable.

When you feel as bad as I do and global experts are not sure what to think, it can be disheartening.

While my situation is less than ideal, I remain hopeful that at some point I’ll be able to move through my day without relentless pain and discomfort.

Until then, I continue to be the best partner and father possible while remaining realistic with my limitations. I believe my family, movement, and mindfulness practices are a form of medicine that has kept me moving and optimistic.